Wow…..how long has it been since I’ve written anything…months, a year?? I guess I could look back and see when but that’s extra steps I’m too lazy to do right now. This last year has been ridiculous in so many ways. This post will be about the experience that has caused the most havoc in my life. I’ll write about other things later.
Back in April I was diagnosed with Papillary Thyroid Carcinoma. I went in for the constant pulsatile ringing in my ears and came out with that. The PTC has nothing to do with the ringing in my ears but a CT scan to check on the ears revealed a suspicious mass of stuff on my thyroid. I wasn’t prepared when I went in for what I thought was an appointment to go over the results of the CT and saw multiple vials and biopsy needles laid out. Doc explained what was going on and said I can wait to do a biopsy if I wanted but he’s ready just in case and thought it a good idea to get the biopsy done. I thought, well I’m here, might as well do it and see what the biopsy reveals. The 12 pokes with the needles into my throat/thyroid weren’t that bad. I was expecting that part to really suck but with lidocaine, it wasn’t too bad. The results were back in a week and poof, you have thyroid cancer. WTF. Doc strongly recommended full thyroidectomy (removal of entire entire thyroid vs. side the cancerous cells were on). He also advised to not get on Dr. Google and to ask him questions and use the links to info he provided. So what do I do? I immediately get on Dr. Google and am a little relieved to see the majority of sites say it’s the “good cancer” if you have to get cancer. It’s highly treatable. After going through it, I can assure it’s not a “good cancer” there is no such thing and it’s not super awesome to deal with. Dr. Google also had sites that indicated it can awful. My doc was right, stay off Dr. Google as there is so much info out there and each case can be different.
So, I learned that thyroid cancer likes to come back regardless if you have a thyroid or not but the chances are a lot less if you have it removed. I opted to have the full thyroidectomy to decrease the chance of reoccurring. In prepping for survey and what happens after, I read all the info my doc provided. I learned a lot more about what the thyroid does (it basically helps run your entire body) in one way or another. The biggest thing is it controls your hormones which in turns controls (or not) your emotions among other things. You’ll also be on hormone meds the rest of your life. Swell. I read a lot and thought I had a good understanding of what would be happening.
A couple months after the surgery I did radioactive iodine (RAI) treatment which helps eradicate any remaining cancer cells. My dose was fairly high at 151. Prior to taking the dose you have to do a low iodine diet so the iodine has a better chance of killing the bad cells, if any. Doing the diet wasn’t as bad as I expected. When you do the RAI treatment you have to stay away from any other living being, people or animal. In my case I had to “isolate” for 4 days. While isolating you can be outside but must stay at least 4 feet from anyone else. The RAI is in pill form and you have to go to the nuclear medicine area of clinic/hospital to take it. It comes in a lead lined container and the staff handles it with gloves, etc. I was a little anxious about how it would make me feel but I felt ok, a little swoony and nauseous but not too bad. I’m lucky that my mom has a place nearby that isn’t used all the time and I could isolate there and be comfortable. Mom had come a few days before and stuffed the fridge and cupboards with all my favorite things. The day after I took the dose I slept quite a bit but felt good enough to go for a 3 mile walk and managed to not pass anyone. By the 3rd day I was getting restless and bored. I love a good murder show but I could only watch so much Forensic Files and Cold Justice.
A couple weeks after the dose you get a body scan to see where the RAI went in the body and to see if there was any other places it hit upon, etc. I was clean after that scan and was now on the schedule of a throat ultra sound every 3 months. The second ultra sound showed a suspicious spot in my throat where my thyroid was so they did another follow up in 3 months and it revealed the spot has grown. Since this stuff likes to return they are no doing another biopsy next week. If it proves to be cancerous, another surgery is warranted. Fingers crossed it’s just a clump of not bad cells.
The ongoing effects of being on hormone meds isn’t really fun. They are keeping me quite suppressed for awhile to help keep it from coming back (if it hasn’t already) and side effects are ridiculous. The biggest side effect is weight gain. I was already chunky and this has added almost 25 pounds in 6 months. I’m back to watching everything I eat, etc but the weight keeps coming. This side effect will remain until my doses can be lowered and I have no idea how long that will be. I am looking into some treatments for help with the weight but it’s a little scary when you read about the side effects. I know the weight gain has really effected my self esteem. I’m embarrassed to see people I haven’t seen in awhile and to be in public. People are very judgy and it really drives home the thought of you really don’t know what people are going through so please try not to judge. Unless they are just stupid, then judge away. The other side effects of the hormone meds is awesome hot flashes, very high and low mood swings. I’ve experienced the lowest lows I ever have and it’s not fun, it’s scary. I worry for my poor husband but so far he’s handling my tantrums an mood swings in stride. We can out mood swing each other sometimes.
I’ve also read about people who go through this and have no issues while others have a lot more issues than I do. I do know this crap is ridiculous and unpleasant.
Cheers to a clean biopsy next week! Take care of yourselves people, listen to your body and your mind. Be proactive in your well being, physically and mentally.










Here’s a pic of the shop on fire.


